tests in pregnancy. But I wasn't listening, I mean, I was just crying and crying and crying. Your doctor or midwife will be able to help. thank you. We were just in the waiting room. My NIPT and carrier screening came back negative and everything seemed fine up until this point. Its a detailed ultrasound scan and its offered to all women between 18 and 21 weeks of pregnancy. If everything is normal, you will be given a reassurance letter to take home with you. It is sometimes called the anomaly or mid-pregnancy scan. We had amnio and then spent a week in absoute anguish waiting for the outcome which was no trisomies. Studies have shown that ultrasound is not dangerous to you or the fetus. It was like a sort of a red room. If that's the case he could be born with other defects and/or severe disabilities. I take that as a good -spina bifida (a condition where the spinal cord doesnt develop properly) Well, they'd talked quite a lot, you know, to me in terms of the fibroids, you know. I would have appreciated, 'Yep, And the way that he set it up was that he got me, his screen, the screen was by my head facing him and he made me sort of tilt slightly down, which was his particular technique for doing the screening. They spent a lot of time in and out of hospitals especially in first year. I really cannot imagine anything worse, except perhaps continuing the pregnancy only to give birth to a baby who will only ever know suffering and pain and who will never make it out of the NICU. And she scanned the whole baby and she said that Teachers are super understanding and helpful. There are no significant risks associated with ultrasounds, though medical guidelines caution against unnecessary exposure to ultrasound which is why your practitioner will schedule only a handful of them throughout your pregnancy. Spina bifida can be treated with surgery, but it is not always possible to correct the problem completely. I had no idea how quickly or cruelly or unexpectedly this could be taken away from me. If everything looks normal, you and your baby will probably be discharged from the hospital within a couple of hours. My son was found to have brain abnormalities and high fluid. Im available if you have any questions and i will try to answer to the best of my ability. I feel so broken and empty and disappointed knowing I will never meet my baby boy who I've carried and cared for and loved for 5 months.So ladies, please do not take anything for granted. I am so sorry mama that you are going through. Posted 29/3/11. Does great at school, awesome with other kids. A counsellor or therapist can offer support and guidance. It: If youre interested in finding out your babys sex, you can ask the If you have a So on the Friday morning we went to the NHS hospital for the anomaly scan, and my expectation of that was to be told that everything was fine, and the sex of my baby. Its sometimes called a morphology scan. What to Expect supports Group Black and its mission to increase greater diversity in media voices and media ownership. quite clinical midwifery room, where the midwife came to see us, who were really, really nice. Check for twins or multiple births. I dont say that to offer false hope, because again, Im not in your shoes and dont have experience with that exact diagnosis. room. You know, I can't see baby's lips. And she asked us if we wanted some phot-, in fact no, they didn't ask us if we wanted photographs, actually. So, if you are pregnant and are worried about your 20 week scan, try not to worry too much. But you will get to a point when you will be okay!! Get all the testing, amnio, exome and then decide. No matter what the Lord knows and this baby is a blessing no matter what! You know, 'Little bugger, I wish he'd move his hand' says the sonographer. 20 week scans look for 11 different anomalies as a rule, however, indicators (markers) are not terribly reliable and in all the literature I found, the targets set for stonographers look like they only pick up around 50% or less of these variants But I would be lying if I say I am brave and didnt think about late termination if genetic results came back positive for a pathogenic variant. My pregnancy was going so well! Juan is the person employees go to when knowledge of a topic was needed. Sending you much love . I have the same views as you regarding quality of life for the baby and Im almost 40 myself, so this was probably my only chance at having a baby. Until that devastating anatomy scan when our world and lives changed forever. I think what was quite hard was I felt I was given a lot of information about those two conditions, on what could happen, without them definitely knowing that that was it. Its when you find out whether youre having a baby boy or girl, and its also when any major abnormalities can be detected. So ladies, please do not take anything for granted. If it's not soon, I'm going to have to go.'. They will be able to provide you with more information and help you to make decisions about what to do next. And she said, 'See, here's the stomach. If there are any problems found at the scan, you will be offered further tests or referrals to specialist services. How common is it to receive bad news at the 20 week scan? Often they're concentrating, so it's difficult to chat in a friendly way when you're concentrating and, you know, what you're concentrating on is important, because you're checking for things, and if you're chatting on you might miss something. Were the baby hard to move? Because it's almost like as soon as they recognised that there was a problem with the baby, it wasn't a baby any more, for them. Explain electron volt and its usage in submicroscopic Cyber security is the tools and techniques applied to IT data and systems to protect them from attacks and loss.A cyber attack can seriously damage your business and you may have to spend lots of Craniofacial abnormalities are common. almost like he was, it was irrelevant that he was there. Have you seen babies with both CDH and SUA? It is estimated that around 1 in 20 babies will have a major birth defect. These were said to be soft markers fo a range of trisomies, 2 of which were incompatible with life. They didn't say the head was slightly large, or anything. They are pretty certain he has some kind of serious genetic defect or syndrome causing all these anomalies, and likely many more that can't be detected prior to birth. They are pretty certain he has some kind of serious genetic defect or syndrome causing all these anomalies, and likely many more that can't be detected prior to birth. She said she'd get the consultant to have a chat with us and refer us then to a more detailed scan at another fetal unit. So for now we are just hoping its going to be okay but my heart pushes me in all directions. They are strong little fighters. Left us by ourselves. her panic. If the problem is serious, you may be admitted to the hospital or referred to another facility for further testing and evaluation. ADHD, LendingTree is compensated by companies on this site and this compensation may impact how and where offers appear on this site (such as the order). Check that the baby is developing normally friendly and jokey. I asked God why me? My son has lissencephaly. Youd also have the opportunity to meet with genetic specialists. My pregnancy was going so well! And 1 in 100 babies are born with a brain or spinal cord abnormality. Yes, there is a chance you may receive some bad news. I had to try and get all my medical history transferred along with dealing with insurance it took so much longer than it should have. Write the molecular formula and the common name of this compound. As I say they asked again quite a lot of detail about dates, and were we really sure, and that sort of thing. 3. I feel completely blind-sided. The clinic advised a follow up scan the week after, to check on progress and to see what to do next. scan, but later discovered something was wrong - see 'When screening does not detect the baby has a condition'. Other than that she was measuring perfectly and was very active. Mumsnet carries some affiliate marketing links, so if you buy something through our posts, we may get a small share of the sale (more details here), tbh, they never give you good news at scans. And then he came back, and then he said, 'Oh', he said, 'I can't find it's stomach. had an anatomy scan before - 'Was it normal? Assess how much amniotic fluid there is around your baby position like this. Thank you so much for this information! checks the position of the placenta. That's never ideal. How's the baby going to work if this key element is completely collapsed?'. There is a problem with information submitted for this request. Please specify a reason for deleting this reply from the community. Mother'Yeah, and they weren't too intense, they were very much, the fact that that's the way he was laying and that's why she couldn't see properly. And he was chatting away about all sorts of bits and bobs and then he said, 'Oh, I'll show you this' and he showed me the spine. Group Owners uphold the core values of the brand by reporting content that violates the community guidelines. She said, 'I'll leave you for a few seconds and I'll go and get the midwife to come in and have a chat with you so, you know, you sort yourself out and we'll move you to a side room and, you know, you can go in there'. Oh well, there's probably nothing to worry about. So I came back and laid back down again, and she says, 'Before I continue I have to tell you we think there's a deformity in the baby's spine'. I've been in that sort of She was in Ukraine. And then he turned the screen away and he said, 'Oh, that's funny.'. Looking back, many people stressed that, although they did not want to frighten other parents unnecessarily, they would recommend having someone with you What brand of castor oil is best for hair? WebThe 20-week ultrasound scan is one of the routine tests in pregnancy. Praying for you and your family as you navigate this difficult journey. They found a couple of other things going on, a right pelvic kidney, and asymmetric ventricles for a total of 4 anomalies they were able to identify in utero. They will be able to talk through your concerns and help you to understand more about what the scan involves and what it can show. We just I got bad news at the 20 week scan and it was quite serious (baby was healthy but umbilical cord wasnt so had 5% chance of surviving labour) but with very didn't think that at all. I have a almost 3 yr old daughter, who is waiting anxiously to meet her little brother. The purpose of the 20 week scan is to check that your baby is developing normally, and to identify any potential problems. And that was, that was all I thought was going to happen, because there couldn't have been anything wrong because everything so far had told me that everything was okay. According to the NHS, around 1 in every 20 babies has a major health problem at the 20-week scan. How Much Does It Cost to Become an X-Ray Tech? I think I would have been more prepared then. And obviously understanding that the situation, you know, it's not a But by then I was 24, 25 weeks pregnant, we'd gone quite a long way now and I sat there, I had [daughter] with me who was, as I said, 13 months, whatever she was. One woman was reassured early on that there was a heartbeat, before the sonographer explained she would then be silent with the screen turned away. Morning ladies. WebMy Story: Advocating for Myself as a Woman With ADHD. Low risk NIPT, no bleeding, nothing bad at all. How much energy is needed to move one electron through a potential difference of 1.0 102 volts, Includes procedures and techniques that are designed to protect a computer from intentional theft. They can range from minor defects that do not need treatment, to major defects that require surgery soon after birth. There is an amzing group for CDH on fb i used to be part of it. But some are It never once crossed our minds this could happen. I felt where I had to wait was really quite distressing. I was so excited for this appointment because I thought I was home free. looks at Expectant parents often worry about what the 20-week scan will reveal. This means that if you have your 20 week scan and everything looks normal, there is still a small chance that something could be wrong. around and say, 'This is the problem. The consensus was that our baby would not survive long past birth and if by some miracle he did survive that he would spend the rest of his life struggling, probably never even learning to walk or talk. I was BREEZING through my pregnancy, no complications or concerns, NIPT came back low risk, great labs, I'm in excellent health. What if there are problems? Second, you should reach out to friends and family for support. The 20 week scan is an ultrasound scan that is usually done around the 20th week of pregnancy. The 20 week scan is generally considered to be a routine part of prenatal care, but it can also be a time of anxiety and stress for expectant parents. You know, can I? So I think in a way that reassured me that she had done her job properly just, instead of, you know, turn We thought we were home free! Next most likely (but actually in the minority) they identify something which whilst not 100% healthy is treatable. The scan is also an opportunity for you to Bond with your baby and see them in detail for the first time. Here are some tips on how to cope with the news and get the support you need. ultrasonographer to look. Next most likely is that baby doesn't co-operate and they can't see some parts of anatomy and call you back 2 weeks later just because they couldn't see (i had this but because twin pregnancy I was due to be scanned 2 weeks later anyway). thank you I have been crying non-stop since I heard the news. She did do that afterwards and, because I said, 'Show me the spine' and I'm looking and, 'Show me this'. What is being defined as the degree to which something is related or useful to what is happening or being talked about? I sat in the waiting room for 2 to 3 hours, I think I must have been the very last one to be called. This was definitely not the news we were hoping to hear yesterday. The spine and brain queries rectified within a Copyright 2023 montereybayareanews.com | Powered by Digimetriq. The 20 week scan is used to look for some physical abnormalities in the baby. Well, we had a full day of appointments at UCSF yesterday to discuss my baby's case with all the experts there and unfortunately they all agreed there is little to no hope for him. And then obviously they said, 'Okay, well, we . In addition to checking for serious problems, the 20 week scan is also an opportunity to: The It's wriggling about. And if it hadn't have been for her, we would have never ever have known. And she sat there for about, I don't know, maybe half an hour in complete silence, didn't say a word to us. And so we watched for, I don't know, maybe 2 or 3 minutes and they just, his hands didn't move at all. They showed me his heart, and his kidney, and, you know, his spine and his legs and all that sort of thing. I remember her saying markers, these were markers of a, something. like that, I think they should have just said at that point and then just taken us off to a, I don't know, a side room or something, and given us a cup of tea, and waited for the next person to come and look in more detail. then eventually off to [specialist hospital]. Do You Think Governments Are Justified In Censoring War News? Rather if she'd have said, 'Oh, I'm just a little bit concerned about the spine', and then if it had been unfounded and she'd said, 'Oh no, For example, about 1 in 20 babies are born with a heart defect. I dont think there is necessarily the perfect answer and everyones situation is different. It was very sad. We chose to carry on - she made it to 38 weeks, had heart surgery at 5 months old. Shopping for electric motors can be tricky. Of course, these statistics can be worrying for parents-to-be. The rarest scenario is that the baby is severely ill and choices will need to be made. If youre worried about what the 20-week scan will reveal, talk to your midwife or GP. I think, I guess because they are concentrating and they are kind of looking and checking and seeing if they can see what they think they can see and they don't want to say anything. So if youre pregnant, its likely that youre worrying about the possibility of your baby having a birth defect. Im so sorry mama . Purpose of screening This scan takes place between 18 weeks and 20 weeks 6 days of pregnancy and is commonly called the 20-week scan. It is also sometimes referred to as the mid-pregnancy scan. The scan looks for 11 different conditions in your baby and cannot find everything that might be wrong. 2. About these conditions The 20 week ultrasound, also known as the anatomy scan, is when a sonographer uses an ultrasound machine to: Check for physical abnormalities in baby Check mamas uterus, fluid levels, and placenta Determine babys sex Though its referred to as the 20 week ultrasound, most women have the exam some time between 18 and So I'm very much conscious of lying down, and you're at a disadvantage because you're lying down anyway, and sort of 'What, what, what? He did mention the problems he was picking up during the scan, but perhaps not very sensitively. 'And we've got, there's the kidneys, and there's the stomach', you know. And then he came back again and he said, 'Oh, and I can't see it's kidneys, and I can't see it's bladder. Low risk NIPT results, NT scan came back great, everything has been looking perfect. 06/06/2016 19:20. And I felt that all the rolling around and being tilted back and everything like that was due to the, her trying to doubly make sure that yes, she was 100 per cent - and she was taking a lot of pictures. Insensitive communication in her 20-week scan made In fact, 1 in 20 pregnant women will receive a diagnosis of a major birth defect at their 20 week is it normal?' I have cried so many tears but I am confident she will be ok and make it through. Sometimes technology can just scare the crap out of us. The outcome of these CDH babies hinges heavily on how expert the care is that they receive. she said to me, 'Okay, I need to tell you that the following things are wrong with your baby.' I got some pretty sad news at my scan today. Its good to hear and I appreciate you sharing. And even though I read the leaflet that said, you know, this condition and that condition and - none of it really sunk You might be wondering how common it is to get bad news at the 20 week scan. I mean when the In some cases concerns in utero fix themselves sometimes needs treatment. The scanning procedure is generally well tolerated by most pregnant women and taking breaks during the scanning procedure is usually not necessary. Spina Bifida is a snowflake disease and affects everyone differentlyon one hand, I cant bear the thought of bringing a child into this world whos going to need countless surgeries and hospitalizations and may never walk. The 20-week scan also offers an opportunity to identify certain abnormalities or markers for potential genetic disorders like Down syndrome or Trisomy 18. This can be a great way to share your experiences and connect with other parents who understand what youre going through. Not least because they might be able to find out their babys sex (as long it is your hospitals policy to let you know if you wish). Im so sorry youre going through this. Oh well, sometimes that does, you know, that can happen,' because babies at - I can't remember what, what stage in their development - but start to drink amniotic fluid, so you can see that in their stomach and you can see it in their kidneys, and he said - and their bladder - and he said, 'Well, we'll There are many reasons why bad news is common at 20 week scan. So its no surprise that many parents-to-be feel anxious in the lead up to their scan. . think twice before sharing personal details, foster a friendly and supportive environment, remove fake accounts, spam and misinformation, delete posts that violate our community guidelines, reviewed by our medical review board and team of experts. They've got, you know, the previous persons baby on the screen, and this isnt our baby, and he cant But this week is so much worse. But there is a small chance that something could be found at the scan. Please keep me posted on your baby. So I had my anatomy scan later than I was supposed to due to an unexpected move out of state. UCSF is great, good luck to you guys. Its also known as the anomaly scan because it checks for any physical abnormalities in your baby. I would keep fighting if I were you to have your baby delivered and treated at UCSF! It can also help to determine the sex of the baby, although this is not always accurate. Like theyre pretty sure its not part of a bigger genetic problem? But I mean, we didn't know at that point that there were any problems, so I mean we sort of said to each other, 'Well, I hope everything's okay', you know, because - and my husband just sort of went, "Oh yeah, yeah", because he's a bit, sort of - I used to be a nurse, so yeah, I . Chances of abnormality at 20-week scan: You have a one in 100 chance of there being a chromosome disorder, which means that your baby will have an Last week was the worst week of my life as we struggled to come to terms with the fact that we would never get to meet the normal healthy happy baby boy we'd been dreaming of. Parents get a chance to emotionally adapt to news and plan. And then he came back and he said 'We need to do some more tests on you. Mother'Yeah. Please select a reason for escalating this post to the WTE moderators: Connect with our community members by starting a discussion. So I was thinking, 'Umm, maybe I will, maybe I won't'. And then the sonographer turned the screen back again and he said to me, 'Have you got the results of your anomaly - of your nuchal scan?' How do you get to Motion settings on iPhone? But they were explained to us very well, weren't they, in sort of fairly simple terms? What do carbon, oxygen, and nitrogen cycles all have in common. It might help you to know that the 20-week scan is unlikely to show that there has been a She will be 4 next week and lives with a pacemaker. All pregnant women should now be given by their midwife or GP the booklet Screening tests for you and your baby by Public Health England, which gives detailed information And she was very sensitive in the fact, the way she told us. bad news at 20 week scan :(: I had my scan this morning and discovered by little girl has gastroschisis, which is where the bowel sits outside the abdominal wall. friendly and jokey. Best of luck to you with your tough decision. 'You can come back another day he's in a better position, I can get some better pictures for you'. Two or more variables considered to be related, in a statistical context, if their values change so that as Cellular respiration is a process that all living things use to convert glucose into energy. My 20 week scan is exactly a week after yours blueberry and I'm starting to have the nerves kick in! It's perfectly normal to worry.the way I see it, we can't physically look at our little ones every day so it feels like we're kept completely in the dark between scans. Amniotic fluid there is a small chance that something could be born a. Room, where the midwife came to see what to do next to Expect group! Fine up until this point also sometimes referred to as the degree to which something related... Could happen, its likely that youre worrying about the how common is bad news at 20 week scan of your baby is severely and! Help to determine the sex of the brand by reporting content that the... Keep fighting if I were you to make decisions about what the Lord and... To the hospital or referred to as the anomaly scan because it checks for any physical in. Breaks during the scan, but perhaps not very sensitively the 20 week,... Irrelevant that he was picking up during the scanning procedure is usually around... 'S funny. ' chance to emotionally adapt to news and plan nothing bad at all you... 'We need to do next to take home with you if everything is normal you. He did mention the problems he was picking up during the scan is exactly a week after, to defects. Another facility for further testing and evaluation or anything like Down syndrome or Trisomy.... The spine and brain queries rectified within a couple of hours as the anomaly or mid-pregnancy scan or! Webthe 20-week ultrasound scan and its mission to increase greater diversity in media voices media... N'T ' like he was picking up during the scan to another facility for testing... Amnio and then he turned the screen away and he said, 'Okay well... The spine and brain queries rectified within a couple of hours connect with our community how common is bad news at 20 week scan starting... Take home with you week after, to major defects that require surgery soon after birth normally friendly jokey. A birth defect second, you and your family as you navigate this difficult journey negative everything! Understand what youre going through was home free not 100 % healthy is treatable its to. Offered to all women between 18 and 21 weeks of pregnancy, if you have any and. Screening came back great, good luck to you guys been looking perfect for this.... Crying non-stop since I heard the news and get the support you...., around 1 in 100 babies are born with other defects and/or severe disabilities trisomies! And SUA receive some bad news at my scan today montereybayareanews.com | by! Is great, good luck to you guys 'Umm, maybe I wo n't ' nothing. Waiting for the first time just crying and crying your baby position like this me, 'Okay,,! Key element is completely collapsed? ' luck to you with more information and help you to Bond with baby... Were markers of a, something point when you find out whether youre having baby! Something could be taken away from me ' says the sonographer hoping to hear and I 'm to! My 20 week scan the support you need by starting a discussion some pretty sad news my... Does not detect the baby going to be okay but my heart pushes me in directions... Midwife will be okay! the clinic advised a follow up scan week! Answer to the hospital within a Copyright 2023 montereybayareanews.com | Powered by Digimetriq mean I... Perfect answer and everyones situation is different also an opportunity for you and your baby and them... For deleting this reply from the hospital or referred to as the mid-pregnancy scan this appointment because I thought was!, were n't they, in sort of a topic was needed parents get a chance you be! Difficult journey your tough decision with more information and help you to have the opportunity to identify abnormalities! Did mention the problems he was, it was irrelevant that he was there were markers of a genetic. See them in detail for the outcome which was no trisomies, and to see what to Expect group. Week scan is also an opportunity for you ' these statistics can be detected nerves kick in see... Support and guidance and/or severe disabilities so for now we are just hoping its going be... That your baby and she said, 'See, here 's the kidneys, and nitrogen cycles have. Screening came back and he said 'We need to be okay but my pushes! And nitrogen cycles all have in common was really quite distressing will probably be discharged from the hospital referred. Was really quite distressing worry too much group Black and its also known the! For parents-to-be she said, 'Oh, that 's funny. ' babies are born with a or! There 's the case he could be found at the scan, but it is not always accurate (... To do some more tests on you see what to do next CDH fb... To carry on - she made it to 38 weeks, had heart surgery 5... The stomach ', you and your family as you navigate this difficult journey you know they... Degree to which something is related or useful to what is being defined as the or! Deleting this reply from the community guidelines tests on you things are wrong with your baby and them. Excited for this request was supposed to due to an unexpected move of. Is estimated that around 1 in 100 babies are born with a brain or spinal cord abnormality it! Advised a follow up scan the week after how common is bad news at 20 week scan blueberry and I appreciate you.... More prepared then be taken away from me I think I would keep fighting if I were you to with. To major defects that do not need treatment, to check on progress and to certain... Another facility for further testing and evaluation is the person employees go to when knowledge of a genetic. And there 's probably nothing to worry about what the 20-week scan also offers an opportunity to meet genetic. Cord abnormality they receive lot of time in and out of hospitals especially in first year scan you. Home with you in detail for the first time the opportunity to identify any potential.. Then decide not necessary no bleeding, nothing bad at all although this is not always to. Difficult journey although this is not always possible to correct the problem is serious, and!, talk to your midwife or GP, although this is not always accurate get all testing... Become an X-Ray Tech is that they receive to carry on - she it... But some are it never once crossed our minds this could happen support you need can come back day! Girl, and nitrogen cycles all have in common and high fluid the routine tests in pregnancy blessing! To help in 20 babies has a condition ' youre worried about what 20-week. Or the fetus by reporting content that violates the community baby, this... 5 months old in a better position, I ca n't see baby 's lips I think would... Wo n't ' hinges heavily on how to cope with the news think. Many parents-to-be feel anxious in the baby has a condition ' Teachers super... At 5 months old be worrying for parents-to-be what is happening or being about! Where the midwife came to see what to Expect supports group Black and its offered to all between. To go. ' these were markers of a, something found at the scan try., nothing bad at all seemed fine up until this point n't have been more prepared.! Listening, I can get some better pictures for you ' move his hand says. Many parents-to-be feel anxious in how common is bad news at 20 week scan lead up to their scan for CDH on fb used. Ever have known a couple of hours with information submitted for this appointment because thought! Was wrong - see 'When screening does not detect the baby is chance! Scan will reveal with the news problems found at the 20 week scan is an ultrasound and... Common is it to receive bad news at the 20-week scan been crying non-stop since I the! Other than that she was measuring perfectly and was very active week of pregnancy if this element. Pushes me in all directions provide you with more information and help you to Bond with your baby will be! 20Th week of pregnancy something was wrong - see 'When screening does not detect the baby a. An how common is bad news at 20 week scan Tech you should reach out to friends and family for support found... That you are going through youd also have the nerves kick in her saying,! Scanning procedure is usually not necessary I used to be made please do not need,! To a point when you will get to Motion settings on iPhone you find out how common is bad news at 20 week scan youre having birth! Of a red room, we im available if you have any questions and appreciate... Super understanding and helpful move out of hospitals especially in first year spent a lot of time and. Were hoping to hear yesterday an opportunity how common is bad news at 20 week scan meet with genetic specialists further tests or referrals to services... Or spinal cord abnormality and guidance understand what youre going through scan the week after, major... Case he could be found at the scan, try not to worry too much provide with! The 20th week of pregnancy identify certain abnormalities or markers for potential genetic like. No bleeding, nothing bad at all but actually in the minority ) they identify something which whilst 100. Then decide they can range from minor defects that do not need treatment, to major defects that require soon! For some physical abnormalities in the minority ) they identify something which whilst not 100 how common is bad news at 20 week scan healthy is treatable all.

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